Welcome to My Pity Party

Today began with a pity party and I had to take out the hats.
Like most people with Parkinson’s (PwP), our days — even our hours and minutes — are a roller coaster ride of highs and lows. My day started extremely low, and my pity party began as soon as I shakily got out of bed. I was totally fatigued even though I’d had a good night’s sleep.
What is a pity party?
In 2007, I battled tonsil cancer, and Steve, my late life partner, was by my side at the time with his steadfast support. Critical to my healing and recovery was Steve’s ability to help me keep my sense of humor. At one very low point during radiation treatment, I was whining about my pain, and Steve said, “Do you want me to get the hats?” I asked, “What hats?” Steve replied, “Hats for the pity party.” We both laughed so hard. From that moment on, I knew I would survive cancer.
I bought some party hats that we frequently brought out whenever one of us was having a pity party. The hats never failed to bring a smile to our faces.
Why was I having a pity party today?
As I struggled to get dressed this morning, my sports bra was not cooperating. I had to battle to put it on, and I broke into tears of frustration when I realized I’d put it on inside out. Only PwP could truly understand the despair over an experience like this. One would later tell me she would have left it inside out. I will file these words of wisdom for the next time.
Next, I had no confidence in my ability to move without knocking things over or bumping into furniture. I was depressed and apathetic, and I was not feeling motivated to go to Rock Steady Boxing (RSB). Then, I tried to organize some paperwork into piles, and I was dumbfounded! I could not figure out how to do this, so I suspect my cognitive skills are starting to fail me. My disease is progressing.
How did I handle this setback?
Almost as if Steve were whispering in my ear, I realized I needed to put away the pity party hats and get on with my day. I needed to go on autopilot to head to RSB class. If I thought about it too much, I would not have gone since I knew it would be a tough workout.
Why was this class different?
This week marks the one-year anniversary of when RSB was first offered in Sag Harbor, New York. At the start of each class, as is her custom, Sensei Michelle has both volunteers and participants gather in a circle, and she asks each of us her question of the day. This is so we all get to know each other better. These questions can be something like “What is your favorite movie?” or “What did you do this holiday weekend?”
What was the question of the day?
Today, Sensei Michelle asked us to reflect on what RSB means

Source: Parkinson's News Today

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