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The CHRONDI Creed: A Guide for Parkinson’s Warriors

CHRONDI Creed

The challenges of any chronic disease require the mental attitude of a warrior. Like the code of the samurai, the CHRONDI Creed is both a guide for battle and for living.

CHRONDI is an acronym from the first letters in the words chronic disease. The letters stand for each part of the creed as follows: C – compassion, H – happiness, R – rehabilitation, O – others, N – nature, D – death, and I – individuality.

Following is the CHRONDI Creed and its self-affirming dialogue. This is followed by a description of each self-affirming statement in this chronic disease warrior’s creed.

C – Compassion: I will act compassionately toward others and find gentleness toward self.

H – Happiness: I will seek the inner bliss of happiness that is not material in nature.

R – Rehabilitation: I will apply courage and mindfulness to my part in fighting the disease.

O – Others: I will genuinely communicate to others my experiences and maintain an attitude of gratitude for their help.

N – Nature: I will take time to embrace nature and all its beauty.

D – Death: I will find the courage to face the terror of “death” (loss) and not let it control me.

I – Individuality: I will continue to express my individuality and my purpose, beyond the disease.

These CHRONDI Creed statements are short “I” statements that not only can be self-affirming, but also they can change how a disease affects one’s life. If these statements become an inner dialogue, a way of thinking and acting, then they can contribute to quality of life.

Compassion as a way of thinking and acting is the foundation of the CHRONDI Creed. It is a state of being that is expressed both externally and internally. In the face of chronic disease, this is certainly difficult. But it doesn’t have to be perfect saintly compassion. It can start with small steps, such as taking the time each day to do something for someone else. In addition, this sense of a gentle kindness can be applied with a kind word to self, such as: “You did well today.”

Happiness is not tied to material things, although it may appear to be. Rather, happiness is tied to an internal state of being often connected to events, not possessions. We are happy because we feel happy. A state of bliss can accompany times when an event generates ecstasy — a bliss of happiness. Happiness is an important part of well-being in the face of chronic disease. Returning to the bliss can be as simple as finding things we enjoy and taking time to laugh out loud.

Rehabilitation means that we will do our part to support all treatment modalities that are used to fight the chronic disease.

The term others stands for all relationships in our lives. The statement is a promise to speak in an authentic manner with a sense of gratitude.

Nature, and all its beauty, when incorporated into life can make a difference in our well-being. A stroll through the woods or a park while maintaining a quiet mind can add to our quality of life. Gardening is also therapeutic.

Death” has quotes around it because it refers to the death of those things the disease has taken and will continue to take. There is “terror” in facing this “death.” Terror management takes courage and practice to find a calm center in the middle of the storm.

Expressing individuality is balanced against the time used by the chronic disease, the thought and emotion that the chronic disease consumes. Find your inner voice, your unique identity, and your purpose. Let that light that is you continue to shine forth.

The CHRONDI Creed is a list of statements I have used to help me as a warrior against the ever-worsening effects of Parkinson’s disease. Not for a single day can I achieve a level of perfection with all aspects of the creed. Perfection is an illusion, perhaps a nightmare. Rather, I hold these statements as an inner dialogue, a path to follow, a gentle guide for living. It is in this way that the CHRONDI Creed improves my quality of life.

How does the CHRONDI Creed sit with you?

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Note: Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Parkinson’s News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Parkinson’s disease.

The post The CHRONDI Creed: A Guide for Parkinson’s Warriors appeared first on Parkinson’s News Today.

Dancing for Dopamine

music, dancing, visual hallucinations, antipsychotics

Sherri Journeying Through

I have been starving for music lately. I am not great at technology stuff, and my husband has much of our media set up so that if I get ahold of the remote control for the music-player thingy, it’s safe to say my husband will soon be working on bringing our technology stuff back to life.

But the other day, I decided to brave it while he wasn’t home because, as I said, I was starving for music. And not just any old music, but some good ol’ Steven Curtis Chapman-style music. Some Chris Tomlin-style music. After finally getting Alexa (the other woman in our home who is technologically very friendly) to finally stop taking a survey from me, and me screaming “ALEXA, STOP!” at the top of my lungs for 10 minutes, I somehow finally got a song to start playing.

During my starvation period, I had begun to feel down. I know that Parkinson’s can assist in making your blue days even bluer, and mine were becoming a dark blue. I wasn’t about to give up hope and decided to put on some music while my husband visited the dentist as I watched my 3-year-old grandson.

For the most part, I cannot play music softly. I have to crank it up and feel it. I’m not talking about the music that my brother used to listen to on the way to school. You know, the kind of music that leaves you shaking out of your skin because the volume is so loud, the drums reverberate inside the speakers, and the electric guitars screech as screech-ily as they can. This was not the kind of music that researchers say relieves the symptoms of depression or eases pain. This was not the kind of music that others say benefits our physical and mental health in many ways. No. This was the kind of music that you don’t want to listen to when your blue skies have turned to gray.

I was reading an article today that said it was recently discovered that dopamine is released when you are listening to music (specifically NOT heavy metal/techno or the like). It also showed that dopamine levels are up to 9 percent higher for those who listen to music. It was also noted that music can increase your focus levels.

After I read that, I cranked up my little techno helper Alexa, and after about six tries, she started playing a Steven Curtis Chapman song. Chapman has never let me down when he sings. He always plays the right song at the right time. Finn (my 3-year-old grandson) came into the kitchen where I was and started dancing. I picked him up and we danced together and he giggled and giggled. And I didn’t know it while we danced across the kitchen floor, but my dopamine levels were very happy. And that made all of me very, very happy.

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Note: Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Parkinson’s News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Parkinson’s disease.

The post Dancing for Dopamine appeared first on Parkinson’s News Today.

Source: Parkinson's News Today